Tuesday, January 4, 2011
It was great to have Sidney celebrate his second Christmas. Considering we didn't think he would even make his first because of his Congenital Megaesophagus doom and gloom diagnosis. But I now know we have many more together for sure, as long as I keep our routine and continue to watch for ANY sign of Aspiration Pneumonia. We did have some problems with his regurgitation over the holidays. Being so busy - we missed a few Bethanechol doses in a row. He then regurgitated the next day a few times. I do not believe in coincidences, so no matter how busy I am, I will never miss one again. It's really easy if he hasn't regurgitated in a week or so to feel the false sense of security that everything is fine. That's the scary part because you always need to keep the routine and be on watch. It's my job to keep Sidney healthy.
To be honest, I'm not sure if the Bethanechol really helps anything as far as motility, etc. But since we started using it, his bad periods are much, much less frequent. So it will continue.
Plus, we have a real Xmas tree and he did eat some of the pine needles that cover the floor. I think this is the last real tree Xmas in order to avoid any issues with Sidney.